Dear Friends & Supporters,
Welcome to Michelle's House!
In the very early spring of 2019, SCDAA-CT will host the grand opening of the first Sickle Cell Community Center in the Northeast. This new facility will be located at 1389 Chapel Street in New Haven CT and will be the new home of the Sickle Cell Disease Association of Southern CT called Michelle's House - in honor of our First Lady Michelle Obama who championed the causes and issues of children across America.
The new Center will focus on the educational needs of our entire community - be it those with Sickle Cell Disease (SCD) across the continuum inclusive of geriatric, adults, and children. The program will also focus on individuals living with Sickle Cell Trait (SCT). We will specifically focus on the academic challenges our youth face as they fall behind academically and therefore have to repeat a grade as they miss so much valuable school time. In fact, National figures show the rate of recidivism to be 40% as compared to the national average of 4.5 %. of all children.
Michelle's House will feature the newest technological IT systems which will support and address the gap in education that children living with Sickle Cell Disease experience. Michelle's house will also focus on Sickle Cell Trait (SCT) since one in ten African Americans and one in 25 Hispanics are carriers of the Sickle Cell Trait. These numbers continue to pose a significant risk for children being born with Sickle Cell Disease.
Goals for the center include:
Decreasing the number of children born with Sickle Cell Trait in CT and on driving community awareness - especially among parents of childbearing age who may knowingly or unknowingly carry the trait.
Providing a safe, home-based HIPPA compliant space - where individuals of the Sickle Cell community can discuss the many challenges they face while battling the symptoms and stigma associated with the disease.
Empowering members of the SCD and SCT communities to experience the freedom to ask for help, and the ability to access support services that will advance their quality of life.
This house will also provide educational support for the immediate community - regardless of their Sickle Cell status.
SCDAA-CT is the region's leading advocate for bringing awareness to this painful and much overlooked and unattended disease. We will never be content with watching our friends, families, and neighbors suffer. We pledge to continue our efforts to create hope, expand community based options, and marshall resources for a cure.